If you follow my blog on chronic pain you know I rarely if ever use the word pain. My approach to managing chronic pain is to practice not thinking about the pain and using natural techniques daily. To friends, family, and my readers I say: “I am having a difficult day” if the pain is just unbearable so everyone knows I am not being rude and no one asks me: “What’s wrong?” Asking what is wrong to a person with chronic pain is close to as annoying as when someone says: “Wow, you look tired.” This post is more for loved ones of those with chronic pain as people suffering from chronic pain already can feel how awful the pain is non stop.
One of the most frustrating aspects of chronic pain is the disease is usually invisible. After my bike accident resulting in brain surgery I clearly looked like I was close to death as visitors saw me in the ICU with half a shaved head, tubes running through each part of my body, and bruises/breaks on both sides of my body. The scars get covered with hair, the bruises fade, the tubes come out, and the breaks heal. However, the pain never goes away. Once I realized I had chronic pain I wanted those bruises, tubes, and scars back more than anything. That way everyone could visibly see I was suffering. When I say that my bike accident and brain surgery were easier to deal with than chronic pain I am not kidding. That was a cake walk compared to a life with chronic pain. People with chronic pain are not faking how they feel or looking for attention or making anything up. Chronic pain can not be seen but it is felt in more ways than I can count.
I have come a long way in my journey with chronic pain. I work my ass off to not focus on the pain and do things each day to manage my pain naturally. This is a very rare post for me as my goal is to show people that there can be a happy life despite chronic pain. However, this scale is not lying. I have seen this scale many times and each time it hits me more how strong people who live with chronic pain are. It also solidifies the fact that the number one reason of death for people with chronic pain is suicide. If you are having difficulty expressing to your loved ones what you are feeling share my story: it is brutally honest and I willingly wrote things about my journey with chronic pain that I truly never wanted to share with anyone. If you have chronic pain you are truly a strong ass person. Just look at this pain scale! Do not be hard on yourself, you really are doing the best you can.