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“Chronic pain is rated on the McGill pain scale as 42/50.  It is the highest thing on the list.  Think about that the next time you say…’It can’t be that bad.'”

When people first read this quote they most likely think about outsiders, family members, and loved ones.  They want their loved ones to know that chronic pain has completely changed their course of life and although most with chronic pain look fine on the outside, they are facing daily pain that is worse on the McGill scale than childbirth.   However, I also think when people read this quote they think about how they feel about themselves.  Many people with chronic pain feel as though they are useless, crazy at times, and literally probably say to themselves: “It can’t be that bad!”  You are not useless, crazy, and your pain is real.  Ignorance in this day in age with all the technology at our hands is un-acceptable as anyone can now Google or find a blog like mine to understand or gain hope regarding an invisible illness.  The worst part about t chronic pain is that it is usually invisible, hence the name of my blog: “No One Gets Flowers for Chronic Pain.”

I had a “difficult night” regarding CP last night and did not sleep much.  I am back to not saying the word “chronic pain” when it comes to me as it only brings attention to the pain which is the opposite of what I want to do.   However due to lack of sleep and worrying most of the night, I awoke to a “difficult day.”  I listened to my body and instead of doing a cardio exercise, I practiced yoga.  I used a DVD by GAIAM entitled, “Yoga for stress and flexibility.”  I never noticed that the leader of the session mentions how much certain postures help those with fibromyalgia.  I highly recommend this DVD by GAIAM as well every DVD they produce.  They have everything from advanced yoga practices to practices for people with anxiety/stress/and depression.  No, I do not work for GAIAM: I truly just love their yoga DVDs more than any other company I have used especially for those with chronic pain.  I know what many think: how can this girl with barely any sleep and having a difficult sleep practice yoga.  I practiced yoga because of chronic pain.  I never did the things I do prior to learning how to manage chronic pain naturally: exercise, yoga, eating well, meditation, slowing down, not working more than 30 hours a week, taking breaks, etc.

Proving to people that you have chronic pain is in a way pointless.  It will just waste your energy, increase your stress, anxiety, and pain.  Some people will never understand why you do the things you do.  Pain changes people, especially chronic pain.  You know what is right for you and I still struggle with people understanding that I have chronic pain and live “differently” than the general population.  It drives me crazy.  You do not need to prove your pain.  So much easier said than done.  However, are you going to spend your time endlessly trying to prove your pain (only making your pain worse) or are you going to focus on YOU and do what is right for you and your invisible illness?  You know who you are, your limits, your needs and you need to follow your inner wisdom no matter who does not believe in you or understand chronic pain.  I get it.  I am here to let you know that I believe you, I have been close to death due to chronic pain, I know chronic pain better than most and have found a way to accept it and practice what is right for me in order to manage chronic pain naturally and live a happy, useful life despite my bike accident and chronic pain.  I believe in you.

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Ignorance and Chronic Pain

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2 thoughts on “Ignorance and Chronic Pain

  1. Great post! Great to read someone else’s perspective on how pain makes life different compared to those without chronic pain. My personal experiences of pain have been comparatively low level, but persistent and intrusive and have undoubtedly changed how I live. I’ve had to readjust my own expectations of myself, and I’m accepting that, but sometimes it’s hard when others can’t. ‘Ok’ is comparative 🙂

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